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Index of Diseases and Conditions: A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Hemophilia

Hemophilia is a rare inherited disorder in which the blood does not clot normally. About 18,000 people in the U.S. have hemophilia. Each year, about 400 babies are born with the disorder. Hemophilia usually occurs in males (with very rare exceptions).

People who have hemophilia may bleed for a long time after an injury or accident. They also may bleed into their knees, ankles and elbows. Bleeding in the joints causes pain and, if not treated, can lead to arthritis. Bleeding in the brain, a very serious complication of hemophilia, requires emergency treatment.

The main treatment is injecting the missing clotting factor into the bloodstream.

National Heart, Lung, and Blood Institute


External Resources

Care For Life - Provides products and therapies designed to treat hemophilia and other bleeding disorders.

Use of Therapeutic Ultrasound to Aid in Blood Resorption - Recommendations approved by the Medical and Scientific Advisory Council (MASAC) of the National Hemophilia Foundation regarding the use of therapeutic ultrasound to aid in blood resorption

Cell Genesys - Focused on the development and commercialization of cancer vaccines and gene therapies to treat various cancers including leukemia, hemophilia A and B, restenosis after angioplasty and Parkinson's disease.

Copernicus Therapeutics, Inc. - Developing human gene therapy products for cystic fibrosis and hemophilia B and DNA vaccinations. The company creates proprietary PLASmin Complexes which are efficient non-viral vectors and REPLIsome vectors which allow replication of non-viral vectors.

World Federation of Hemophilia: FAQ - Information and safety issues about blood collection, hemophilia, and blood products.

Octagen Corp. - Privately held company developing therapies for hemophilia and other genetic disorders, using recombinant Factor VIII and gene therapy. Includes clinical trial status, licensing, corporate profile and contacts in Bala Cynwyd, Pennsylvania.

VersaPharm Incorporated - Pharmaceutical developer and marketer of specialty prescription products to the United States, working to develop and deliver pharmaceuticals primarily for treatment areas of Tuberculosis, Hemophilia, and other blood disorders.

Carolina Purchasing Alliance - Specialized distributor of plasma derived pharmaceuticals including IVIG and hemophilia factors.

Blood Diagnostics, Inc. - Wholesale distributor of plasma derived pharmaceuticals, including IVIG, hemophilia fators VII, VIII & IX, albumins and hyper-immunes and injectables.

Hemophilia Galaxy - Support information specifically designed for people with hemophilia, their families, and health care professionals.



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